About Amyloidosis Web Sites

This site contains information from various web sites about amyloidosis and kidney disease that have been reformatted and reorganized. There are numerous links to the original documents.

The goal is to make the information easier to find and to allow the sharing of information between users.

This is a very big undertaking and you can help me help others. Please add your comments or questions to any topic that concerns you. If you know of additional resources please include links to them.

I am especially looking for:

• Experiences of amyloidosis and kidney disease patients
• Experiences of family members of amyloidosis and kidney disease patients
• Experiences of amyloidosis and kidney disease caregivers
• Experiences of amyloidosis and kidney disease physicians
• Experiences of amyloidosis and kidney disease researchers

• Information about specific amyloidosis and kidney disease products
• Information about specific amyloidosis and kidney disease treatments
• Information about specific amyloidosis and kidney disease medications
• Information about hospitals specializing in the treatment of amyloidosis and kidney disease
• Information about clinics specializing in the treatment of amyloidosis and kidney disease
• Information about physicians specializing in the treatment of amyloidosis and kidney disease

If possible please include:

• Links to amyloidosis and kidney disease websites
• Links to chronic kidney disease websites
• Links to amyloidosis and kidney disease blogs
• Links to amyloidosis and kidney disease news articles
• Links to amyloidosis and kidney disease research articles

Amyloidosis Australia

Amyloidosis Australia was created by a family effected by amyloidosis. They have done an excellent job of compiling information about the condition.

Here's what they have to say about their site:

This website is run by a family in Australia affected by Amyloidosis, a rare protein folding disorder, and we hope to provide information, support and advice for anyone in Australia also affected by Amyloidosis. It is a purely personal venture, and we are not funded or run by any external source. We do not aim to provide in-depth information on Amyloidosis itself - this has been expertly covered in other websites.

Amyloidosis and Kidney Disease

Amyloidosis and Kidney Disease

This site contains information from government publications about amyloidosis and kidney disease that have been reformatted and reorganized. There are numerous links to the original documents.

Sam and Jan Teauge's Amyloidosis Site

Sam and Jan Teauge's Amyloidosis Site

Welcome to our site! We established it to let you know a little more about us, and to keep you up to date on our journey. We hope that better awareness of Amyloidosis will lead to earlier diagnosis for those who have it. The love of God and the support of our family and friends are the most important ingredients in our recipe for success. As you pray for us, also pray for all of those affected by this disease. There are some great people out there fighting the same battle. Thanks for the prayer, thanks for the care.

Amyloidosis Research Foundation

Amyloidosis Research Foundation

This foundation has been established to raise funds for research to find the cause for amyloidosis and develop more effective means of diagnosis and treatment.

The foundation is dedicated to all who have passed on from amyloidosis, amyloid suffers, their caregivers and family members: and also to the researchers who have dedicated their efforts to overcome this disorder.

Pedro Soares Amyloidosis Web Site

Pedro Soares Amyloidosis Web Site

Pedro Soares is an individual with amyloidosis. The site is in Portuguese with an English translation.

עמילואידוזיס

עמילואידוזיס

Amyloidose - Seite

Amyloidose - Seite

This site is in German.

Dieser Aufstellungsort ist auf Deutsch.

Association Amylose Infos

Association Amylose Infos

This site is in French.

Cet emplacement est en français.

NORD - National Organization for Rare Disorders, Inc.

NORD - National Organization for Rare Disorders, Inc.

This site has a comprehensive list and descriptions of types of amyloidosis.